The hospice we are using is called "Alpenglow - The perfect light at the end of the day" I found out that Alpenglow is the purple that is sometimes seen in the sky just before sun set or sun rise...lighting that is very coveted by photographers.
I've met with the RN and am very pleased...she is super kind and seems to know what she is doing...she was impressed with Dalaynee and the questions she had about Jeff...she will come here 2 times a week. Also I've met with the Home Health Care Aid, I really liked her too...she will be here 3 times a week to help with bathing, shaving, feeding or whatever I need so I get a break. And today I met with the Social Worker, again I am very pleased...she will be here next week again...she will help me with funeral arrangements, therapy for Dalaynee if necessary and various other things having to do with death. Alpenglow also provides volunteers to step in if I have to run errands etc... So far, I have been very blessed to have Andrew & Zack (my step sons) provide me much time away from the house to do whatever. It's proven to be good for Jeff, who sleeps most of the day to see very familiar faces if he does decide to get up!!
I am real good at coming off strong...but I have major melt downs when I let myself. It's just so hard to believe that Jeff is dying! But, my hope and comfort is that God has a plan..at least there is some reason for this!
Please just continue to pray for strength for us and comfort and peace for Jeff.
Thank you! May God shine on you today!
Jayne
11 comments:
You are an amazing woman, so unbelievably strong. God has a plan, it would be nice if he would give us a manual so we knew what to expect, but then I guess we wouldn't see how magnificient he truly is. If you need anything at all, let me know, you are in my thoughts and prayers everyday.
Blessings-Angela
Wow Jayne, it sounds like you are surrounded by many professional people to see to it that not only Jeff is taken care of, but also you,your beautiful daughter, and Jeff's boys! This can't be easy on any of you. I will pray for peace to surround you during these trying times. I am so sorry that you have to travel this journey but trust that God will carry you all through it!!
With lots of love from many miles away!
Jayne, So glad to hear you have some great people by your side to help you through this terribly difficult time, not only family but professionals who've dealt with this as well. Praying alongside so many others for your family!
Jayne, I am so glad to hear that you have a lot of people who are there to help you through this difficult journey. My heart aches for all of you. We will continue to pray for strength, comfort and peace along with many others. We love you lots! Tell Jeff we love him too.
Love you all from many miles away.
Sharla and family
Jayne,
Our prayers go out to you.
It is distressing that the local doctors have given up on Jeff especially when the doctors in Chicago seemed to believe they could help Jeff in his fight against the tumor.
The individuals from hospice are good at what they do but the Lord is the great physician and our prayers for you and Jeff,Dalaynee, Andrew and Zack continue.
Nord Family,
This must be so hard for your whole family! You all are in our thoughts and prayers daily. I'm so glad you have a lot of professional people there to help you and your family. I know God will take care of you during this very difficult trial. We love you lots.
Ed & Noella
To anonymous (above Ed & Noella): Who are you? So you know, The doctors in Chicago only gave us a 50/50 chance that what they were going to do would help...that is no better odds than anyone else. Also, the Cedars Sinai Doctor is a brain cancer specialist and I believe that God directed us to stay here for treatment. Thank you for your continued prayers!!! =)
Praise and thanksgiving I finally figured out how to change my password on Google! Wasn't hard, but I had too much pride to ask Gary to help me, so it took me this long to have a presence on this blog! OK,so Jayne...thank you so much for all you do for keeping us informed! You really must know there are so many people who are caring about your family right now! I have read everything all along the way, and feel a part of your story! Prayers are with you, and so is your family! I'll now talk to you soon! (through this blog!)
Michelle
Our prayers are always with you! Think about you alot with all that you all are going thru. Glad to hear you are surrounded by good caregivers in addition to your great family!
Love,
Daryl and Kath
Thinking about you all today.....I hope you are all having a blessed Father's Day. Zack, Andrew, and Dalaynee are certainly blessed with a wonderful, loving father. We love you, and continue in our prayers.
Keep walking, Keep moving. It was good to see Jeff in the photo above. Dalaynee knows her Dad.
Meltdowns are ok...either way friends and family surround all of you.
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