Ok...L.A. here we come...

Well, we met with Cedar Sinai doc today and decided that we would do the new chemo and full dose of Avastin at Cedar Sinai 2 times a month. Jeff should start them next week, I'll know the schedule tomorrow. I feel better about having him treated in L.A. just so that doc can keep a better handle on things.

Please pray the God's name is glorified in all things and that we don't miss what He needs us to do to carry out His plans for this journey...also pray that this treatment is God's healing tool (Jeff will have 3-4 treatments before having another scan).

May God bless you!!!
Jayne

Should we stay or should we go now?

Well, after much prayer, pacing, and conversation with various people, including Jeff...we decided to stay home and have more chemo. The fact that the Cedar Sinai Dr. is a Brain specialist really made an impact. We can still keep the radiation on the back burner if needed later.

Thank you for all your prayers, comments and emails! Without my support system (God, Family, Church & Neighbors) I would not be able to do this!!!

Bless you today!
Jayne

small wrench!

I heard from our Nuero Oncologist at Cedar Sinai in LA today, he wanted to know what our decision was for further treatment. When I told him what they proposed in Illinois and that we felt this seemed like a better option than more chemo, he quickly got back to me to say that he strongly disagrees with Jeff having more radiation, he believes that radiation is not the answer for us at all. He says that he just realized that Jeff only got half a dose of the Avastin with the last chemo treatments (Avastin is the medication they were giving along with chemo), he recommends a full dose with a different chemo.

Now I am really confused!! I think we might still go to Illinois tomorrow and sit down with that doc to discuss the differences in the treatments and then go to LA to talk with that Doc on Friday, I'm not sure yet. I am starting to think we may be staying home for treatment. The LA Doc is a Nuero Oncologist (brain Cancer doc) and the Illinois Doc is a Radiation Oncologist (Radiation Cancer Doc). They are not specific to the brain in Illinois and in LA they are. Please pray that God gives me direction. Thank you!

Illinois, here we come...again...and...again

Well, most of you have heard already but here's the scoop...
We returned home on Saturday night, but while we were in Illinois, we met with the Oncologist at the CTCA and he believed that more chemo wouldn't be helpful...Jeff has already done 2 of the best chemos available without much of an impact on the tumor, so we should try something else. He set up an appointment for us to see the Radiation Oncologist (Dr. Eden) http://www.cancercenter.com/midwestern-hospital/physicians/bernard-eden.cfm
We liked Dr. Eden right away...Jeff was wearing a cap that read "Isaiah 41:30" and as soon as the doc came in he said "ooh, good verse!"..."thou shalt rise on wings like eagles..." Then he said "I'm Catholic, but I love Jesus!" (What a flashing red light from God...Thank you Lord!!!!) Then he looked at Jeff's scans and said that he believed there is a 50% chance that with Tomo Therapy http://en.wikipedia.org/wiki/Tomotherapy he can either shrink the tumor, get rid of it, or stop it from growing!!! GREAT NEWS, however, there are two drawbacks for us...Jeff's memory might be affected more than it already is and we have to be in Illinois for 3 weeks (They would do 2 treatments a day for 3 weeks). But, we loved what we were hearing...so we decided this might be a better option than staying here and doing more chemo. The first step is for them to do 2 scans which helps them be very precise on where to shoot the radiation, and then they need a week to calibrate the machine...this means that we are again departing for Illinois tomorrow, they will do the scans on Wednesday, and we'll be home on Thursday. Then we'll go back in a week to start the treatments. Part of the 3 week period Dalaynee and mom and Laur will be with us and we are going to try to come home on the weekends, that way we shouldn't get too homesick.

This hospital is unbelievable http://www.cancercenter.com/midwestern-hospital.cfm ...there are patients there from all over the country and a lot of them seem to be Christians. I can't tell you how many times I heard "If you have Cancer, this is the place to be!"

We thank our Lord for direction! And I want to thank many of you for your encouragement that we are doing the right thing...you've given me clarity!

You are all such a wonderful blessing!!!!

Illinois here we come...

Well, I got a call fro the CTCA and they have booked a flight for us on Monday out of Long Beach airport (which is 20 minutes away from our house) on Jet Blue departing at 10:30a and arriving in Chicago at 4:29p. They said there will be a limo at baggage claim to take us to our hotel...we have a room at the Radisson (which is 20 minutes from the hospital) for $40/night (very doable)...we are kind of excited even though we are not going for fun. We may be there 3-4 days for the consultation and we are praying for God to make clear for us the decision to receive treatment there or return and do more chemo here. The girl I spoke with in Illinois said that it's been in the 30's lately, but she said that's pretty nice! NICE! I live in So. Cal...30's is COLD!!! Anyway, we should be okay...Wednesday is Jeff's birthday, so it might be kind of nice to get away together over his birthday.

Thank you for your prayers about my hope...I do feel more hopeful with this consult. Please pray that this is God's healing tool. Also, that we get there safely and return home safely.

Thank you to all...we are grateful and truly blessed by all of you!!!!!